ABSTRACT
Background: Prior to the COVID-19 pandemic, oncology patients attended in-person educational sessions to understand the practicalities and side-effects of their planned systemic anti-cancer treatments (SACT). These were halted during the pandemic to minimise hospital attendances. Moreover, patients were unable to bring family or friends for support at consultations. Providing this key treatment information in a digital format using videos was proposed with these aims: 1. Improve accessibility of information. 2. Improve patient experience. 3. Improve staff experience and efficiency. Method(s): A network collaboration with the Royal Free London and North East London Cancer Alliance enabled consistency of information and increased exposure of the videos. A patient-centred approach was taken in developing the videos: 1. A baseline patient survey assessed current and proposed methods of communicating: patients received written and verbal information, but some felt they had been given 'too much' or 'not enough' information and 33% of patients reported a video would be helpful. 2. A patient focus group guided content: cannulation, real patient experiences and images of staff/facilities were identified as important. 3. The videos were translated into four languages to meet the needs of the local patient population. A multiprofessional team of doctors, nurses, managers and communications staff were involved in the development and production of the videos. Between November 2020 and September 2021, several Plan Do Study ACT (PDSA) cycles were undertaken to create, edit and review content in the production process, with patient and production team feedback throughout. Intervention(s): Three videos were produced covering an overview of treatment and the side-effects of chemotherapy and immunotherapy. These were disseminated via trust websites, YouTube and QR codes on posters. Learning outcomes of the videos were assessed by separate patient and staff feedback surveys. Result(s): 15 patients were approached prior to starting SACT to complete a questionnaire prior to and after watching the videos. Prior to watching the videos, 60% of patients felt they had not received enough SACT information, 73% were anxious about treatment. After watching the videos, 100% reported understanding of the common side-effects of treatment and how to contact the hospital for advice. 87% would recommend the videos to others, 73% would watch them again. 100% of staff surveyed agreed that the videos improved accessibility to key patient information. The videos answered common questions patients asked staff prior to starting treatment. Over six months, there have been >300 YouTube views. [Formula presented] Conclusion(s): Multilingual patient information videos are an effective way to deliver key information about SACT, improve patient experience and reduce anxiety. Next steps are to intensify signposting by increasing stakeholder exposure, and consider adapting the videos for national use. YouTube views will be counted to continue to monitor the use and sustainability of this intervention. Keywords: systemic anti-cancer therapy, digital, videos, patient education, patient experience, patient information, multilingual, staff experience, network collaboration, SACT, chemotherapy, immunotherapy Copyright © 2022
ABSTRACT
Purpose: The aim of this study was to investigate the effects of the COVID-19 pandemic on the referral, diagnosis, treatment, and follow-up of germ cell tumor (GCT). Methods: A retrospective single-center analysis of all patients who underwent diagnostic and surgical procedures due to GCT was performed from September 2018 to September 2021. Results: 65 patients were enrolled into the study by dividing them into two groups as before pandemic (Pre-CovGCT) and during the pandemic (CovGCT). 33 patients in the Pre-CovGCT group and 32 patients in the CovGCT group were evaluated and compared. A significant increase was observed for symptom duration (p = 0.018), the duration between diagnosis and surgical procedure (p = 0.028), and occult metastasis risk of stage 1 tumors (p = 0.05) during the pandemic period. Conclusions: The duration of symptoms and the duration between the diagnosis and surgical procedure were prolonged in GCT patients diagnosed during the pandemic. Furthermore, an increased risk of occult metastasis has been observed in stage 1 GCT patients. We underline the importance of raising the awareness of patients about admission to the hospital without delay in the presence of testicular cancer symptoms and recommend to be careful not to delay the treatment process.